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Genetics : Sickle_Followup_Program

                                          Sickle Cell Disease Followup Program
           410-767-6737
Sickle Cell disease is a common disorder of the red blood cells. It is called “sickle cell disease” because the person’s red blood cells can become shaped like a “sickle”, or like the letter “C”. These cells are sticky and rigid, rather than round, soft and smooth, and cannot move easily through the body. Because of their odd shape, they may not be flexible enough to squeeze through small blood vessels and can deprive body parts of oxygen and can cause pain and damage tissues. Sickle Cell is a disease that is inherited, this means that people cannot “catch” the disease from being around others with the disease but is passed genetically from parents to child.
 
Sickle Cell is a serious disease and can cause complications; your child needs to count on you to make informed and good decisions about their health care. Even as an adult, good decisions and medical follow up will help in decreasing complications and improve your quality of life.
 
 
Maryland’s Sickle Cell Follow Up Program follows newborns through children and young adults age 18, providing them and their families information about Sickle Cell Disease and other hemoglobin disorders, what to expect from your provider and specialist, guides to living with Sickle Cell disease, and other information pertaining to daycare, school, sports, transitioning to an adult provider, web resources and organizations of interest to persons with Sickle Cell disease.
 
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The Statewide Steering Committee on Services for Adults with Sickle Cell Disease is a group of sickle cell patients, health care providers, medical insurers, and community representatives, appointed by the DHMH Secretary. The Committee is charged with educating Marylanders about SCD and identifying resources and services that could be used to improve the lives of affected residents.  
Use the following link to access committee information;
http://msa.maryland.gov/msa/mdmanual/26excom/html/32sickle.html
 
Click here for more information on Committee Meetings.
 
 
Information on Sickle Cell and other Hematologic Disorders
 

For Parents
 





 
 
 
 
Emergency Guidlines
 
Go to an emergency room or urgent care facility right away for:
  • Fever above 101° F
  • Difficulty breathing
  • Chest pain
  • Abdominal [belly] swelling
  • Severe headache
  • Sudden weakness or loss of feeling and movement
  • Seizure
  • Painful erection of the penis that lasts more than 4 hours
 Source CDC
 
  
  
'Stay Healthy' Game for Kids
 
To play game; go to Kodugamelab.com and search for “Stay Healthy” (082714 version) or scan the code below.  Game requires an Xbox game controller.​
 


 
 
 
 
 
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Office For Genetics And People With Special Health Care Needs
201 West Preston Street - Baltimore, MD 21201
Tel (410) 767-6730   Fax (410) 333-5047