Grant Funding and Partnerships


2017 Funding Announcement

The Office of Genetics and People with Special Health Care Needs is happy to announce funding opportunities for Family Centered, Community-based Systems of Coordinated Care for Children and Youth with Special Health Care Needs.  Application due date May 13, 2016.


HRSA: Title V MCH Block Grant
Title V is a federal grants program, administered by the Maternal and Child Health Bureau (MCHB) of the Health Resources and Services Administration. For over 75 years, the Federal Title V Maternal and Child Health program has provided a foundation for ensuring the health of the Nation’s mothers, women, children and youth, including children and youth with special health care needs, and their families. OGCSHCN is Maryland’s Title V program for CYSHCN. Each year, Maryland reports to MCHB on how they use Title V Funds. Here is Maryland’s latest report:
Every five years, states conduct a comprehensive Needs Assessment for Title V programs. Here is Maryland’s 2010 Title V Needs Assessment. It is a lengthy document with a lot of useful information. For data specific to Maryland CYSHCN, go to Appendix C, starting on page 284 of the PDF document: 
Local Health Departments:  The OGPSHCN provides funds to many of Maryland's Local Health Departments (LHDs). LHDs funds are used to support care coordination and Medical Home implementation and Health Care Transition activities.
FY16 Local Health Department Grants:  click here
Systems Development Grants:   There are many services for CYSHCN available in the state of Maryland and the OGCSHCN provides yearly funding to a significant portion of them. Grants are awarded annually to projects that reflect the current priorities of the office. For fiscal year 2016, priorities of the office included funding for Health Care Transition services, Medical Home model of services, Genetic services, Local Health Departments, Systems development, Family Support and Advocacy Programs.
Title V awarded system grants for fiscal year 2016 which represents the office priorities.
FY 16 System Grant Awards: click here
HRSA: Reducing Loss to Follow-up in Maryland After Failure to Pass Newborn Hearing Screening
Funding provided by HRSA has been used to develop the statewide newborn and infant hearing screening, evaluation and intervention program in Maryland.  Efforts through this grant are heavily focused on reducing loss to follow up/loss to documentation of babies who missed or did not pass the newborn hearing screening.  HRSA funding has also allowed face to face educational outreach to physicians in areas of the state where loss to follow up/documentation rates are highest and for the establishment of the Parent Connections parent to parent mentoring program which connects families of babies who have newly identified hearing concerns to families with similar experiences.
CDC: Development, Maintenance and Enhancement of Early Hearing Detection and Intervention Information System (EHDI-IS) Surveillance Programs
Funding provided by the CDC has been used to establish, maintain and enhance the program’s data management system.  The data management system is used to ensure that babies receive timely hearing screening and evaluation follow up and that referrals for early intervention services, if appropriate, are made at the earliest age possible, preferably by 6 months of age.  The data system has been enhanced to include the management of Critical Congenital Heart Disease (CCHD) screening data and Birth Defects Information Reporting System (BDRIS) data.
System Change Grants
3 Year Grants Awarded to PPMD and OGPSHCN 
The Parents' Place of Maryland, in partnership with the Office for Genetics and People with Special Health Care Needs, was awarded a three-year "State Implementation Grant for Improving Services for Maryland Children and Youth with Autism Spectrum Disorders and Other Developmental Disabilities" from the federal Maternal and Child Health Bureau.  This award is based on a strategic plan developed in partnership with many families, providers, physicians, local and state agency personnel, and many other stakeholders across the state of Maryland. 

We are delighted to announce that The Parents' Place of Maryland, in partnership with the Office for Genetics and People with Special Health Care Needs, was awarded a three-year "Access Improvement Grant for Maryland Children and Youth with Epilepsy" from the federal Maternal and Child Health Bureau.  For more on these grants, please visit

 Office For Genetics And People With Special Health Care Needs

201 West Preston Street - Baltimore, MD 21201
Tel (410) 767-6730   Fax (410) 333-5047